منابع مشابه
Dravet syndrome: Characteristics, comorbidities, and caregiver concerns
The Dravet Syndrome Foundation (DSF) conducted the largest in-depth survey of parents and caregivers of patients with Dravet syndrome (DS) to date, in order to (1) identify top concerns among caregivers, (2) establish an approximate frequency of characteristics and comorbidities of DS beyond seizures, and (3) provide direction for clinicians and researchers looking to study the effects of DS on...
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BACKGROUND Alcoholism is a major threat to the individual as well as the society and the maximum burden of the illness is borne by the family. AIM The study is aimed at assessing the pattern of burden on the caregivers of alcohol dependent patients and at assessing the relationship between the severity of dependence and the burden on caregivers. SETTINGS AND DESIGN Cross-sectional descripti...
متن کاملHigh levels of caregiver burden in Prader-Willi syndrome
OBJECTIVES Prader-Willi syndrome (PWS) is a rare genetic neurodevelopmental disorder that is characterized by hyperphagia, developmental delay, incomplete sexual development, mild-to-moderate intellectual disability, and a variety of challenging behavioral and psychiatric symptoms. The characteristics of PWS can be difficult for caregivers to cope with and are likely to cause significant and lo...
متن کاملCaregiver care.
In 2009, nearly 66 million Americans (three in 10 U.S. households) reported at least one person providing unpaid care as a family caregiver. More adults with chronic conditions and disabilities are living at home than ever before, and family caregivers have an even higher level of responsibility. Caring for loved ones is associated with several benefits, including personal fulfillment. However,...
متن کاملPatient and caregiver viewpoints.
For example, in this issue of the Journal, a patient with coronary artery disease discusses how he perceived his interactions with his physicians and his concerns about the lack of attention to his values and goals. In a future issue, we expect to publish the reflections of 2 sisters on their father’s experience of a complication in connection with an ICD lead replacement and how they experienc...
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ژورنال
عنوان ژورنال: Journal of Neurodegenerative Disorders
سال: 2017
ISSN: 2642-4274
DOI: 10.36959/459/592